Narcolepsy is a disease that has affected over 50,000 Americans. Diagnosed as recurrent periods of sleepiness during the day it affects all the daily activities that we take for granted. Caused by an hereditary defective gene, research is constantly being done to the parts of the brain that control sleep. At this point there is no cure but this disorder can be controlled to a great extent through lifestyle.
Understanding this illness and having the necessary support to cope with it are paramount in helping to keeping the sufferer safe thru all the activities the day may bring. This disorder of the brain affects personal relationships as well as schooling, driving and the working environment. The reduction of stress can be of great help. Also, avoid stimulants such as caffeine and nicotine, especially in the evening.
When driving long distances long stopping often is recommended. Always try to have a passenger in the car, try never to drive alone. A short nap before driving will help also. You will need a more flexible work schedule than other co-workers to allow for rest periods during the day. Working close to home is an option, as that will help to cut down on the time of the daily commute. People suffering from this illness are protected by the American’s With Disabilities Act. Employers have to accommodate people with this disability by adjusting the work schedule and allowing for nap times during the day.SSI also offers financial aid if you cannot find employment due to having narcolepsy.
Seeking professional counseling in your area will help with a better understanding of this disorder and enable yourself and your family to better management of your daily activities. If you have a child in school with this illness proper arrangements should be made. Discuss this issue at length with the teacher and the school therapist. To best manage this illness while at school any medication needed to be taken should be kept at a convenient location by the school nurse along with a daily rest schedule. Pregnancy is another factor to consider. Working closely with your doctor, education is needed about the daily medication that is to be taken and how it may affect the pregnancy and the child. Being informed will help in making the correct choices for the course of treatment.
Narcolepsy is an illness that can be treated and controlled with knowledge and daily awareness. Keeping in mind that frequent rest, the avoidance of harmful stimulants, an understanding family and workplace, along with support while at school can facilitate anyone suffering from narcolepsy to have a productive and positive life.
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